Hello Everyone,
I wanted to start off by asking everyone to pray for the other little boy who has CGD that went through transplant 100 days after James. Samuel has come across many of obstacles along the way and needs some prayers right now. We all know how much the power of prayer actually works because we have seen it save James’ life. Thank you for helping it means the world.
*We had a doctor appointment today and all of his numbers look good. His T-Cells and B-Cells are still 100% donor, which is GREAT news. His hemoglobin has been hanging low the last couple of months but they are watching it closely.
*We were surprised today because they took him of Tacro, which is his last immune suppressant medication. This is a huge milestone because now the other medications will start to taper off as well. (3-6months from now)
*Dr. Douglas also let us know that she is thinking that she wants to take his broviac out and put a port in instead. This would mean he could shower and take a bath. Come summer time he may even be able to go in the pool, which he hasn’t been able to sine he was months old. They still need a line in there because of so many blood draws and possible IV’s.
*We still are VERY limited on what we can do. Still unable to visit anyone’s house or go into public. We did bring him to a nature preserve the other weekend, which made him so happy.
*His hair looks great, I don’t think there are any bare areas anymore=) He now weighs 35lbs which is amazing; it is so nice that he has his appetite back.
*Special thanks goes out to my long time best friend Nicole Gaul. She set up a fundraiser at her school for James. She surprised me and acted like she wanted to skype James just for her class and it ended up it was for the entire school. They were all wearing the BELIEVE t-shirts and Super hero shirts in honor of James. It was so amazing to see all the students over at Kennedy School. They showed how enormous their hearts are. Thank you all so much.

Sorry about the long post…. I hope to have updated pictures soon so you can see the progress this Superman has made. We feel so blessed that he has been doing so well during this journey and we want to thank you all for your prayers and thoughts.
BELIEVE!!!
Dan, Sam, and James