Hello everyone....just wanted to write a quick blog so everyone is caught up on James' progress. On Wednesday this week James went into the hospital to have some bone marrow taken out of his hip bone. They wanted to test it to see how his marrow is working. Before we went into the hospital we had to go get his blood drawn and be seen by his doctor at our clinic. Our Dr. walked in and said she had some news we had been waiting for. I knew it had to be the CGD test results. Sure enough it was and she let us know that his immune system is functioning at a NORMAL level and the part that wasn't working before IS working now....which means the CGD is GONE!!!!!!!!!!!!!! And yes I kept the paper that proved it...I'm thinking I might hang it above my bed So as long as James holds onto his donor's marrow he will not have any problems with CGD coming back. Great news!!! Then we went over to the hospital where they had to put James out to get his marrow which ALWAYS scares us to death. But like always the kid handled it like a champ. Woke up a little groggy came home, got a huge monster truck from Daddy for being so brave and snapped right out of it. Running around again like a crazy man. I would have stayed in bed for like two days and milked it=) Today we got the results of his marrow and it is working beautifully!!!! This has been a great week for James. Now Monday he will have a chest x-ray and a hearing eval and that will finish up his 100 day work up....can you believe it 100 days out already. Oh and the hair...ummmm....has some killer bangs and some fuzz but thats about it. Also James' best bud Colin got his trach out this week and is doing wonderful so we are all thankful for how well our boys are doing.
 Tomorrow the Mottola family is having their The 3rd Annual Captain Jim Mottola Memorial Golf Outing and this year they have graciously chosen for their cause and proceeds to go to James ....we are hoping the rain can stay away so everyone can enjoy a nice round of golf and a great dinner. We are incredibly touched and honored to be a part of this outing. There are no words that can express how thankful we are, they will be forever in our hearts. We are truly amazed to see how many people out there care. Thank you all so much for your love and support. We would have NEVER been able to get through all of this without you. We still have a journey ahead of us but it is SO nice to finally see a light at the end of the tunnel.
BELIEVE!!!!
Dan, Sam, and James