100% strong on Day 69
Hello everyone....thought we would give you all an update about whats been going on...
*Every month they do a blood test to see how much of James T cells and chemistries are him and his donor. We are very happy to say for the last 2 tests James is showing to be 100% donor which is GREAT. Now that can always change which is fine too as long as he holds on to the donors cells.
*James 3rd birthday was great!! We decorated the house with balloons so when we woke up he would be surprised. We had an early celebration with Pa before he left to go back to Chicago. Then we had a "party" for him. James was so excited because he was finally able to see his best buddy Colin. So the party consisted of mom, dad, Papa, Nannie,Melissa, Colin, Nick, and Audra ( Colins parents our friends and neighbors) It was so nice to see how excited James was to have people over for his birthday. This birthday is going to be one we will never forget. We have so much to be thankful for and to celebrate. I was pretty emotional, just to have my boy and to be able to be celebrating his 3rd birthday was the most AMAZING feeling I have ever felt.
*Rash: his rash got a ton better in the last couple of weeks but in the last few days it looks like it may be making a comeback. It may be because they are weaning his steroids and his Tacro level was low during the last wean but we go tomorrow to get it looked at again. We just hope we can catch it before it goes crazy like it did before.
*Hair: James is starting to get a couple of hairs come up. Looks so cute like a little bird=) I cut off 13 and 1/2 inches and donated it to Locks of Love.
*Speech: Today he had a speech eval because the doctors thought he was needing one because of his hearing loss. My mom and I took James today and I felt like I was the one going to go take a test. Nervous....just because I didn't want another person judging and telling us whats wrong with our boy. Dan and I never thought he had any problems but our docs wanted him checked out. James once again BLEW them away with how smart he is and the words he does say different are completely age appropriate and not caused by his hearing loss. YAY a GREAT appointment today. So PROUD of James.
*Attitude: James has been in some of the best moods we have ever seen him in lately. He is running around like a crazy man and playing trucks and cycles all the time. Its amazing to look at him and think about what this little body has been through in his little life already. I mean I really can't believe it. Brings tears to my eyes.
We will update again soon. Thank you all again for your continuous love and support!!
BELIEVE
Dan, Sam, and James
*Every month they do a blood test to see how much of James T cells and chemistries are him and his donor. We are very happy to say for the last 2 tests James is showing to be 100% donor which is GREAT. Now that can always change which is fine too as long as he holds on to the donors cells.
*James 3rd birthday was great!! We decorated the house with balloons so when we woke up he would be surprised. We had an early celebration with Pa before he left to go back to Chicago. Then we had a "party" for him. James was so excited because he was finally able to see his best buddy Colin. So the party consisted of mom, dad, Papa, Nannie,Melissa, Colin, Nick, and Audra ( Colins parents our friends and neighbors) It was so nice to see how excited James was to have people over for his birthday. This birthday is going to be one we will never forget. We have so much to be thankful for and to celebrate. I was pretty emotional, just to have my boy and to be able to be celebrating his 3rd birthday was the most AMAZING feeling I have ever felt.
*Rash: his rash got a ton better in the last couple of weeks but in the last few days it looks like it may be making a comeback. It may be because they are weaning his steroids and his Tacro level was low during the last wean but we go tomorrow to get it looked at again. We just hope we can catch it before it goes crazy like it did before.
*Hair: James is starting to get a couple of hairs come up. Looks so cute like a little bird=) I cut off 13 and 1/2 inches and donated it to Locks of Love.
*Speech: Today he had a speech eval because the doctors thought he was needing one because of his hearing loss. My mom and I took James today and I felt like I was the one going to go take a test. Nervous....just because I didn't want another person judging and telling us whats wrong with our boy. Dan and I never thought he had any problems but our docs wanted him checked out. James once again BLEW them away with how smart he is and the words he does say different are completely age appropriate and not caused by his hearing loss. YAY a GREAT appointment today. So PROUD of James.
*Attitude: James has been in some of the best moods we have ever seen him in lately. He is running around like a crazy man and playing trucks and cycles all the time. Its amazing to look at him and think about what this little body has been through in his little life already. I mean I really can't believe it. Brings tears to my eyes.
We will update again soon. Thank you all again for your continuous love and support!!
BELIEVE
Dan, Sam, and James
great updates! thanks- big prayers continue! love cara
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All great news. Fantastic idea to donate your hair Sam! Tell James Happy 3rd Birthday for us!
Love,
Jack, Maye, Holly, Kris, and Mark
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What a great post!!Many prayers and love continue to flow your way!!!
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